For further information on OCD, its treatment, and how to get help, you
may wish to contact the following organizations:
Anxiety Disorders Association of America
11900 Parklawn Drive, Suite 100
Rockville, MD 20852
Makes referrals to professional members and to support groups. Has a
catalog of available brochures, books, and audiovisuals.
Association for Advancement of Behavior Therapy
305 Seventh Ave.
New York, NY 10001
Membership listing of mental health professionals focusing on behavior
Madison Institute of Medicine
Obsessive Compulsive Information Center
7617 Mineral Point Road, Suite 300
Madison, WI 53717-1914
Computer data base of over 13,000 references updated daily. Computer
searches done for nominal fee. No charge for quick reference questions.
Maintains physician referral and support group lists.
Freedom From Fear
308 Seaview Ave.
Staten Island, NY 10305
Offers a free newsletter on anxiety disorders and a referral list of
P.O. Box 70
Milford, CT 06460-0070
Offers free or at minimal cost brochures for individuals with the disorder
and their families. In addition, videotapes and books are available. A
bimonthly newsletter goes to members who pay an annual membership fee of
$45.00. Has over 250 support groups nationwide. Can refer to mental
health professionals and treatment facilities in your area with experience in treating OCD by mail.
Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
New York, NY 11361-2874
Publications, videotapes, and films available at minimal cost. Newsletter
goes to members who pay an annual fee of $45.00.
Trichotillomania Learning Center
1215 Mission Street, Suite 2
Santa Cruz, CA 95060-3558
Membership fee of $35.00 includes information packet and bimonthly
For information on other mental disorders, contact:
Information Resources and Inquiries Branch
National Institute of Mental Health
6001 Executive Boulevard, Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
Books Suggested for Further Reading
Baer L. Getting Control. Overcoming Your Obsessions and
Compulsions. Boston: Little, Brown & Co., 1991.
DeSilva P and Rachman S. Obsessive-compulsive Disorder: that
Facts. Oxford: Oxford University Press, 1992.
Foa EB and Wilson R. Stop Obsessing! How to Overcome Your Obsessions
and Compulsions. New York: Bantam Books, 1991.
Foster CH. Polly's Magic Games: A Child's View of
Obsessive-Compulsive Disorder. Ellsworth, ME: Dilligaf Publishing,
Greist JH. Obsessive Compulsive Disorder: A Guide. Madison, WI:
Obsessive Compulsive Disorder Information Center. rev. ed., 1992.
(Thorough discussion of pharmacotherapy and behavior therapy)
Jenike MA. Drug Treatment of OCD in Adults. Milford, CT: OC
Foundation, 1996. (Answers frequently asked questions about OCD and drug
Johnston HF. Obsessive Compulsive Disorder in Children and
Adolescents: A Guide. Madison, WI: Child Psychopharmacology
Information Center, 1993.
Matisik EN. The Americans with Disabilities Act and the Rehabilitation
Act of 1973: Reasonable Accommodation for Employees with OCD. Milford,
CT: OC Foundation, 1996.
Neziroglu F. and Yaryura-Tobias JA. Over and Over Again: Understanding
Obsessive-compulsive Disorder. Lexington, MA: DC Health, 1991.
Rapoport JL. The Boy Who Couldn't Stop Washing: The Experience and
Treatment of Obsessive-Compulsive Disorder. New York: E.P. Dutton,
Steketee GS and White K. When Once Is Not Enough: Help for Obsessive
Compulsives. Oakland, CA: New Harbinger, 1990.
VanNoppen BL, Pato MT, and Rasmussen S. Learning to Live with OCD.
Milford, CT: OC Foundation, 1993.
The Touching Tree. Jim Callner, writer/director, Awareness films.
Distributed by the O.C. Foundation, Inc., Milford, CT. (about a child with
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DuPont RL, Rice DP, Shiraki S, and Rowland C. Economic costs of
obsessive-compulsive disorder. Unpublished, 1994.
Foa EB and KoZak MJ. Obsessive-compulsive disorder: long-term outcome of
psychological treatment. In Mavissakalian & Prien (Eds.), Long-term
Treatments of Anxiety Disorders. Washington, DC: American Psychiatric
Press, 1996, 285-309.
Hiss H, Foa EB, and Kozak MJ. Relapse prevention program for treatment of
obsessive-compulsive disorder. Journal of Consulting and Clinical
Psychology 62:4:801-808, 1994.
Jenike MA. Obsessive-compulsive Disorder: efficacy of specific treatments
as assessed by controlled trials. Psychopharmacology Bulletin
Jenike MA. Managing the patient with treatment-resistant
obsessive-compulsive disorder: current strategies. Journal of Clinical
Psychiatry 55:3 (suppl):11-17, 1994.
Jenike MA et al. Cerebral structural abnormalities in obsessive-compulsive
disorder. Archives of General Psychiatry 53:7:625-632, 1996.
Leonard HL, Swedo SE, Lenane MC, Rettew DC, Hamburger SD, Bartko JJ, and
Rapoport JL. A 2- to 7-Year follow-up study of 54 obsessive-compulsive
children and adolescents. Archives of General Psychiatry
March JS, Mulle K, and Herbel B. Behavioral psychotherapy for children
and adolescents with obsessive-compulsive disorder: an open trial of a new
protocol-driven treatment package. Journal of the American Academy of
Child and Adolescent Psychiatry 33:3:333-341, 1994.
Pato MT, Zohar-Kadouch R, Zohar J, and Murphy DL. Return of symptoms
after discontinuation of clomipramine in patients with obsessive-compulsive
disorder. American Journal of Psychiatry 145:1521-1525, 1988.
Swedo SE and Leonard HL. Childhood movement disorders and
obsessive-compulsive disorder. Journal of Clinical Psychiatry
Swedo SE and Leonard HL. Excessively compulsive or obsessive-compulsive
disorder? It's Not All in Your Head. New York, NY: HarperCollins,
The National Institute of Mental Health is part of the National Institutes
of Health (NIH), the Federal Government's primary agency for biomedical and
behavioral research. NIH is a component of the U.S. Department of Health
and Human Services.
This brochure is the second revision by Margaret Strock, staff member in
the Information Resources and Inquiries Branch, Office of Scientific
Information (OSI), National Institute of Mental Health (NIMH) of a
publication originally written by Mary Lynn Hendrix, OSI. Expert
assistance was provided by Jack Maser, PhD, Dennis Murphy, MD, Matthew
Rudorfer, MD, and Lynn J. Cave, NIMH staff members; Wayne K. Goodman, MD,
University of Florida College of Medicine; Michael A. Jenike, M.D.,
Massachusetts General Hospital; Edna B. Foa, PhD, and Michael J. Kozak,
PhD, Medical College of Pennsylvania; Gail S. Steketee, PhD, Boston
University; and James Broatch, MSW, Obsessive-Compulsive Foundation.
Material appearing in this brochure is in the public domain except where
noted and may be reproduced or copied without permission from the
Institute. Citation of the source is appreciated. Portions that are
copyrighted may be reproduced only upon permission of the copyright
US DEPARTMENT OF HEALTH AND HUMAN SERVICES
National Institutes of Health
National Institute of Mental Health
NIH Publication No. 99-3755
Printed 1991, Revised 1994, Revised September 1996, Reprinted 1999