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Back To Vidyya Diabetic Patients & Practitioners Needn't Be In The Dark

Comprehensive Resource List Can Help People Find Information Fast

This directory lists Government agencies, voluntary associations, and private organizations that provide diabetes information and resources. Some of these diabetes organizations offer educational materials and support to people with diabetes and the general public while others primarily serve health care professionals.


Department of Health and Human Services

National Institutes of Health (NIH)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is the Government's lead agency for diabetes research. NIDDK operates three information clearinghouses of potential interest to people seeking diabetes information and funds six Diabetes Research and Training Centers.

Home page: http://www.niddk.nih.gov

National Diabetes Information Clearinghouse (NDIC)

1 Information Way
Bethesda, MD 20892-3560
Tel: (301) 654-3327
Fax: (301) 907-8906
E-mail: National Diabetes Information Clearinghouse
Home page: http://www.niddk.nih.gov/health/diabetes/ndic.htm

Mission: To serve as a diabetes information, educational, and referral resource for health professionals and the public. NDIC is a service of NIDDK.

Materials: Diabetes education materials are available free or at little cost. Literature searches on myriad subjects related to diabetes are provided. NDIC publishes Diabetes Dateline, a quarterly newsletter.

National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

3 Information Way
Bethesda, MD 20892-3580
Tel: (301) 654-4415
Fax: (301) 907-8906
E-mail: nkudic@info.niddk.nih.gov
Home page: http://www.niddk.nih.gov/health/kidney/nkudic.htm

Mission: To provide information about kidney and urologic diseases to the public, patients and their families, and health care professionals. NKUDIC also works with related organizations to educate people about kidney and urologic diseases; answers inquiries; and develops, reviews, and distributes publications. NKUDIC is a service of NIDDK.

Materials: Education materials, including the fact sheet Kidney Disease of Diabetes and the booklet End-Stage Renal Disease: Choosing a Treatment That's Right for You; literature searches on a number of topics related to kidney and urologic diseases; and Research Updates in Kidney and Urologic Health, a semiannual newsletter.

Weight-control Information Network (WIN)

1 WIN Way
Bethesda, MD 20892-3665
Phone: (202) 828-1025 or 1-877-946-4627
Fax: (202) 828-1028
E-mail: win@info.niddk.nih.gov
Home page: http://www.niddk.nih.gov/health/nutrit/win.htm

Mission: To address the health information needs of individuals through the production and dissemination of educational materials. In addition, WIN is developing communication strategies for a pilot program to encourage at-risk individuals to achieve and maintain a healthy weight by making changes in their lifestyle.

Materials: Fact sheets, pamphlets, reprints, consensus statements, reports, and literature searches on weight control, obesity, and weight-related nutritional disorders. WIN's newsletter, WIN Notes, is published semi-annually and provides health professionals with the latest research findings and progress about the WIN program.

Diabetes Research and Training Centers (DRTCs)

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) supports six DRTCs across the United States.

Mission: To offer educational seminars and workshops for health care professionals, develop and use an array of educational assessment and evaluation instruments, provide expert advice on developing and implementing diabetes programs, and provide referrals to people with diabetes.

Materials: Individual centers produce a variety of diabetes education materials. For information about publications and programs, contact the individual center listed below:

Albert Einstein DRTC
Judith Wylie-Rosett, Ed.D., R.D.
Belfer Bldg. 1308
1300 Morris Park Avenue
Bronx, NY 10461
Tel: (718) 430-3345
Fax: (718) 430-8634
E-mail: jwrosett@aecom.yu.edu
Web page: http://medicine.aecom.yu.edu/diabetes/DEC.htm

Indiana University DRTC
David G. Marrero, Ph.D.
Indiana University School of Medicine
The National Institute for Fitness and Sport
Room 122
Indianapolis, IN 46202
Tel: (317) 278-0905
Fax: (317) 278-0911
E-mail: dmarrero@mdep.iupy.edu

Michigan DRTC
Roland G. Hiss, M.D.
G1103 Towsley Center, Box 0201
University of Michigan Medical School
Ann Arbor, MI 48109-0201
Tel: (734) 763-1426 or (734) 763-5739 (Secretary)
Fax: (734) 936-1641
E-mail: mfunnell@medmail.umich.edu

University of Chicago DRTC
Wylie L. McNabb, Ed.D.
Center for Research in Medical Education and Health Care
University of Chicago Department of Medicine
5841 S. Maryland Avenue, MC 6091
Chicago, IL 60637
Tel: (773) 753-1310
Fax: (773) 753-1316

Vanderbilt University DRTC
Diabetes Research and Training Center of Vanderbilt Medical School
315 Medical Arts Building
1211 21st Avenue, South
Nashville, TN 37212
Tel: (615) 936-1149
Fax: (615) 936-1152

Washington University DRTC
Edwin B. Fisher Jr., Ph.D. (medical research only)
Washington University School of Medicine
Division of Health Behavior Research
4444 Forest Park Avenue, Suite 6700
St. Louis, MO 63108
Tel: (314) 286-1900
Fax: (314) 286-1919

National Eye Institute (NEI)

National Eye Health Education Program
Box 20/20
Bethesda, MD 20892-3655
Tel: (800) 869-2020 (for health professionals only)
or (301) 496-5248
Fax: (301) 402-1065
E-mail: 2020@nei.nih.gov
Home page: http://www.nei.nih.gov

Mission: NEI's National Eye Health Education Program (NEHEP) promotes public and professional awareness of the importance of early diagnosis and treatment of diabetes eye diseases. NEHEP is a partnership with various public and private organizations that plan and implement eye health education programs targeted to a variety of high-risk audiences.

Materials: NEI produces patient and professional education materials related to diabetic eye disease and its treatment, including literature for patients, guides for health professionals, and education kits for community health workers and pharmacists. The following are titles that focus on diabetic eye disease: Educating People with Diabetes (kit), Information Kit for Pharmacists, and Ojo con su Visión (Watch Out for Your Vision) (in Spanish).

National Heart, Lung, and Blood Institute (NHLBI) Information Center

P.O. Box 30105
Rockville, MD 20824-0105
Tel: (301) 592-8573
Fax: (301) 592-8563
E-mail: nhlbiic@dgsys.com
Home page: http://www.nhlbi.nih.gov/health/infoctr/

Mission: To respond to telephone and mail inquiries related to high blood pressure, cholesterol, asthma, heart attack, obesity, and sleep disorders, as well as information requests associated with cardiovascular disease prevention and heart-health promotion.

Materials: Patient education materials are available on numerous topics including cholesterol, high blood pressure, asthma, heart disease, exercise, obesity, stroke, sarcoidosis, and Raynaud's phenomenon. Treatment guidelines for health professionals are available on high blood cholesterol, high blood pressure, and asthma. Professional materials are also available on heart and lung health in the workplace and schools. Serial publications include Heart Memo, which provides program updates about cholesterol, high blood pressure, and heart attack, and Asthma Memo, which describes the activities of the National Asthma Education and Prevention Program.

National Oral Health Information Clearinghouse (NOHIC)

1 NOHIC Way
Bethesda, MD 20892-3500
Tel: (301) 402-7364
Fax: (301) 907-8830
E-mail: nidr@aerie.com
Home page: http://www.nidr.nih.gov

Mission: To serve as a resource for patients, health professionals, and the public who seek information on the oral health of special care patients: people with genetic or systemic disorders that compromise oral health, people whose medical treatment causes oral problems, and people with mental or physical disabilities that make dental hygiene difficult. A service of the National Institute of Dental and Craniofacial Research, NOHIC gathers and disseminates information from many sources, including voluntary health organizations, educational institutions, Government agencies, and industry.

Materials: NOHIC provides a variety of services to help patients and professionals obtain information including patient education materials and literature searches. OH Notes is NOHIC's newsletter, which is published annually.


Centers for Disease Control and Prevention (CDC) Division of Diabetes Translation
National Center for Chronic Disease Prevention and Health Promotion
Mail Stop K-10
4770 Buford Highway NE.
Atlanta, GA 30341-3717
Tel: (877) CDC-DIAB
Fax: (301) 562-1050
E-mail: diabetes@cdc.gov
Home page: http://www.cdc.gov/diabetes
(home page includes fact sheets, statistics, publications, and information about State diabetes control programs)

Mission: Reduce the burden of diabetes in the United States by planning, conducting, coordinating, and evaluating Federal efforts to translate promising results of diabetes research into widespread clinical and public health practice.

Materials: CDC distributes several publications including a patient guide for people with diabetes (available in English and Spanish); a diabetes surveillance report; and an eight-page National Diabetes Fact Sheet: National Estimates and General Information on Diabetes in the United States. State-based diabetes control programs develop and maintain local programs and produce materials on diabetes for the general public and health professionals.


Indian Health Service (IHS) Indian Health Service Headquarters
Diabetes Program
5300 Homestead Road NE.
Albuquerque, NM 87110
Tel: (505) 248-4236
Fax: (505) 248-4188

Mission: To develop, document, and sustain a health effort to prevent and control diabetes in American Indian and Alaska Native communities.

Materials: IHS makes many diabetes resources available, including the Diabetes Curriculum Packet, nutrition education materials, general diabetes information, professional resources, training programs, posters, audiovisual materials, and other patient education materials. Educational materials are directed toward populations served by IHS and are written at a lower reading level. Materials can be obtained upon request from the IHS Diabetes Headquarters Office.


Office of Minority Health Resource Center (OMH-RC) P.O. Box 37337
Washington, DC 20013-7337
Tel: (800) 444-6472
Fax: (301) 589-0884

Mission: To improve the health of racial and ethnic populations through the development of health policies and programs. OMH-RC is the largest resource and referral service on minority health in the Nation.

Materials: OMH-RC offers information, publications, mailing lists, database searches, referrals, and more for African-American, Asian, Hispanic/Latino, Native American/Alaska Native, and Pacific Islander populations. OMH-RC publishes the newsletter Closing the Gap.


Department of Veterans Affairs Veterans Health Administration (VHA)

Program Chief, Diabetes
Veterans Health Affairs
810 Vermont Avenue, NW.
Washington, DC 20420
Tel: (202) 273-8490
Fax: (202) 273-9142

Mission: To decrease the prevalence of adverse health outcomes in veterans with diabetes by ensuring that each patient at each facility has access to preventive and treatment programs that meet national standards of care.

Materials: VHA Diabetes Clinical Practice Guidelines is a comprehensive, evidence-based document that incorporates information from several existing, national consensus, evidence-based guidelines into a format that maximally facilitates clinical decisionmaking. An algorithmic format was chosen because of evidence that such a format improves data collection and diagnostic and therapeutics decisionmaking and changes patterns of resource use. Guidelines were developed in six major subject areas: glycemic control, foot care, eye care, hypertension, lipids, and renal disease. A computer version of the algorithm is under discussion.


Professional and Voluntary Associations

American Association of Clinical Endocrinologists (AACE)

1000 Riverside Avenue, Suite 205
Jacksonville, FL 32304
Tel: (904) 353-7878
Fax: (904) 353-8185
Home page: http://www.aace.com

Mission: The American Association of Clinical Endocrinologists is an international organization representing physicians devoted to enhancing the field of clinical endocrinology. Its primary goal is to provide an avenue for the study of the scientific, social, political, and economic aspects of endocrinology consistent with maintaining the highest levels of patient care and the highest standards of medical practice.

Materials: AACE publishes a peer-reviewed scientific journal, Endocrine Practice. The organization also publishes The First Messenger newsletter and other timely publications, such as practice guidelines, to keep members abreast of scientific developments and news.


American Association of Diabetes Educators (AADE)

100 West Monroe, 4th floor
Chicago, IL 60603
Tel: (312) 424-2426
Fax: (312) 424-2427
Diabetes Educator Access Line: (800) TEAMUP4 (800-832-6874)
Home page: http://www.aadenet.org

Mission: To advance the role of the diabetes educator and improve the quality of diabetes education and care.

Materials: AADE publishes The Diabetes Educator, a bimonthly journal for multidisciplinary members of the diabetes healthcare team. The journal publishes the latest diabetes education research along with valuable teaching tools and techniques. AADE also produces the most comprehensive diabetes education resource, A Core Curriculum for Diabetes Education, now in its third edition. AADE members receive AADE News, providing association-related news and practice information, nine times per year. Call AADE for a complete listing of all educational products, including publications, videotapes, and patient materials, available through the association.


American Diabetes Association (ADA)

American Diabetes Association
National Service Center
1701 North Beauregard Street
Alexandria, VA 22311
Tel: (703) 549-1500 (National Service Center), also (800) 232-3472 or (800) 342-2383 (800 DIABETES)
Fax: (703) 549-6995
Home page: http://www.diabetes.org

Mission: To prevent and cure diabetes and to improve the lives of everyone affected by diabetes.

Materials: The American Diabetes Association publishes many books and resources for health professionals and people with diabetes. In addition, it publishes several magazines and journals. Diabetes Forecast is a monthly magazine for people with diabetes. Diabetes, Diabetes Care, and Diabetes Spectrum are professional journals. For further details and ordering information on ADA's publications, contact the American Diabetes Association, Order Fulfillment Dept., P.O. Box 930850, Atlanta, GA 31193-0850; (800) 232-6733; or see http://www.diabetes.org/Publications.


American Dietetic Association (ADA)

216 W. Jackson Boulevard
Chicago, IL 60606-6995
Tel: (312) 899-0040
Fax: (800) 899-1976
Home page: http://www.eatright.org

Mission: To serve the public through the promotion of optimal nutrition, health, and well-being.

Materials: The American Dietetic Association publishes a monthly professional journal, The Journal of the American Dietetic Association, and a monthly newsletter, ADA Courier. In addition, it publishes many books and other resources for consumers and professionals.

Diabetes Care and Education Dietetic Practice Group (DCE)
(a subgroup of the American Dietetic Association)
For information, contact the American Dietetic Association using the above information.

Mission: To promote quality nutrition care and education. As leaders in the diabetes community, DCE members make positive contributions to people with diabetes and their families, the DCE membership, and other professional organizations and industry.

Materials: Professional and consumer publications have been created by DCE in conjunction with both the American Dietetic Association and the American Diabetes Association. Materials can be ordered through either association. In addition, a bimonthly newsletter is published for members.

National Center for Nutrition and Dietetics, Consumer Nutrition Hotline
(part of the American Dietetic Association)

Tel: (800) 366-1655
Home page: http://www.eatright.org

Mission: To promote optimal nutrition, health, and well-being for the consumer through the center's programs and services. A toll-free consumer nutrition hotline, which includes a referral service to registered dietitians, and a resource library are available.


American Foundation for Urologic Disease Inc. (AFUD)

1128 N. Charles Street
Baltimore, MD 21201
Tel: (800) 242-2383 or (410) 468-1800

Mission: To provide research grants, patient and public education, Government relations, and patient support group activities.

Materials: AFUD publishes an informational brochure about the organization; Family Urology, a quarterly newsletter; and several patient education brochures.


American Podiatric Medical Association (APMA)

9312 Old Georgetown Road
Bethesda, MD 20814-1698
Tel: (301) 571-9200
Fax: (301) 530-2752
E-mail: askapma@apma.org
Home page: http://www.apma.org
APMA Foot Care Information Center
Tel: (800) FOOT-CARE (800-366-8227)

Mission: To serve the professional needs and promote the standards and ethics of doctors of podiatric medicine and their services to the public.

Materials: APMA publishes a monthly magazine, APMA News; a monthly journal, Journal of the American Podiatric Medical Association; and a diabetes-specific booklet, Your Podiatric Physician Talks About Diabetes, along with many other brochures on various foot health topics.


Diabetes Action Research and Education Foundation

426 C Street, NE.
Washington, DC 20002
Tel: (202) 333-4520
Fax: (212) 785-9595
E-mail: daref@daref.org
Home page: http://www.daref.org

Mission: To support and promote education and scientific research to enhance the quality of life for all people affected by diabetes.

Materials: Provides exercise videos designed for people with diabetes. Publishes the booklet Diabetes Self-Management: Basics and Beyond.


Endocrine Society

4350 East West Highway, Suite 500
Bethesda, MD 20814-4410
Tel: (301) 941-0200
Fax: (301) 941-0259
E-mail: endostaff@endo-society.org
Home page: http://www.endo-society.org

Mission: The Endocrine Society works to promote excellence in research, education, and the clinical practice of endocrinology. The Endocrine Society works to foster a greater understanding of endocrinology among the general public and practitioners of complementary medical disciplines, and to promote the interests of all endocrinologists at the national scientific research and health policy levels of Government.

Materials: The Endocrine Society publishes four professional journals: Endocrinology, The Journal of Clinical Endocrinology and Metabolism, Endocrine Reviews, and Molecular Endocrinology. Another publication, The Clinical Endocrinology Update Syllabus, provides practicing endocrinologists with a review of the diagnosis and management of all major components of contemporary endocrinology.


International Diabetes Federation (IDF)

Rue Defacqz 1
B-1000 Brussels, Belgium
Tel: 32-2/538-5511
Fax: 32-2/538-5114
E-mail: idf@idf.org
Home page: http://www.idf.org

Mission: To bring together people concerned with diabetes through their professional or personal lives and use their combined strengths to further issues of importance to people with diabetes; to serve as a federation of diabetes associations in 114 countries around the world, in official relations with the World Health Organization (WHO) and the Pan American Health Organization (PAHO).

Materials: The IDF publishes The IDF Newsletter; The IDF Bulletin; Together We Are Stronger, a guide to building successful diabetes associations; and Lowering the Price of Ignorance, a world view on diabetes education.


International Diabetic Athletes Association (IDAA)

1647 West Bethany Home Road, #B
Phoenix, AZ 85015
Tel: (800) 898-4322
Fax: (602) 433-9331
E-mail: idaa@diabetes-exercise.org
Home page: http://www.diabetes-exercise.org

Mission: To enhance the quality of life for people with diabetes through exercise.

Materials: The Challenge is IDAA's quarterly newsletter. IDAA also provides pamphlets on diabetes and exercise.


Juvenile Diabetes Foundation International (JDF)

120 Wall Street
New York, NY 10005
Tel: (800) 533-2873 or (212) 785-9500
Fax: (212) 785-9595
E-mail: info@jdfcure.com
Home page: http://www.jdfcure.org

Mission: To support and fund research to find a cure for diabetes and its complications. The Juvenile Diabetes Foundation is a nonprofit, voluntary health agency.

Materials: JDF publishes the quarterly journal Countdown and a series of patient education brochures about type 1 and type 2 diabetes.


National Certification Board for Diabetes Educators (NCBDE)

330 East Algonquin Road, Suite #4
Arlington Heights, IL 60005
Tel: (847) 228-9795
Fax: (847) 228-8469
Phone requests for exam applications: (913) 541-0400

Mission: The National Certification Board for Diabetes Educators (NCBDE) is dedicated to promoting excellence in the field of diabetes education through the development, maintenance, and protection of the Certified Diabetes Educator (CDE) credential and the certification process.

Materials: NCBDE publishes the Certification Program for Diabetes Educators, a brochure that contains information about eligibility requirements and the certification examination.


National Glycohemoglobin Standardization Program (NGSP)

Randie R. Little, Ph.D., Network Coordinator
Department of Child Health, M772
University of Missouri School of Medicine
1 Hospital Drive
Columbia, MO 65212
Tel: (573) 882-1257
Fax: (573) 884-4748
E-mail: chrandie@showme.missouri.edu
Home page: http://www.missouri.edu/~diabetes/ngsp.html

Mission: The purpose of the NGSP is to standardize glycohemoglobin test results so that clinical laboratory results are comparable to those reported in the Diabetes Control and Complications Trial (DCCT), where relationships to mean blood glucose and risk for vascular complications have been established. A key component of the program is the Reference Laboratory Network. The network interacts with manufacturers of glycohemoglobin methods to assist them first in standardizing their methods and then in providing comparison data for certification of traceability to the DCCT.


National Kidney Foundation, Inc. (NKF)

30 East 33rd Street
New York, NY 10016
Tel: (800) 622-9010 or (212) 889-2210
Fax: (212) 689-9261 or (212) 779-0068
Home page: http://www.kidney.org

Mission: To eradicate all diseases of the kidney and urinary tract. To seek the means to prevent kidney disease, while ensuring that individuals with disease receive the finest care.

Materials: NKF has several publications including The Kidney, American Journal of Kidney Diseases, CNSW Perspectives, CRN Quarterly, CNNT Action Update, and NKF Family Focus. Additional patient and public education materials are available.


Pedorthic Footwear Association (PFA)

9861 Broken Land Parkway, Suite 255
Columbia, MD 21046-1151
Tel: (410) 381-7278 or (800) 673-8447
Fax: (410) 381-1167
Home page: http://www.pedorthics.org

Mission: To increase knowledge and understanding of pedorthics and its practice, to encourage development of new pedorthic tools and techniques, and to foster the professional development of pedorthic practitioners.

Materials: PFA publishes the bimonthly magazine Current Pedorthics, formerly called Pedoscope; the brochures Pedorthics: Foot Care Through Proper Footwear and Diabetes & Pedorthics: Conservative Foot Care; reference guides; and manuals.


Private Organizations

International Diabetes Center (IDC)
Institute for Research and Education
Health System Minnesota

3800 Park Nicollet Boulevard
Minneapolis, MN 55416-2699
Tel: (612) 993-3393
Fax: (612) 993-1302
E-mail: idcpub@hsmnet.com

Mission: To improve the quality of life of individuals with diabetes and those at risk of developing diabetes by undertaking clinical care, education, research, and outreach activities that stimulate and support health. IDC also seeks to improve the health care delivery system by continually developing, implementing, and evaluating outcomes of diabetes management.

Materials: IDC has a wide range of publications for people with diabetes and diabetes educators, including books, booklets and planners, and a curriculum for type 2 diabetes.


Joslin Diabetes Center

One Joslin Place
Boston, MA 02215
Tel: (617) 732-2400
Home page: http://www.joslin.org

Mission: To provide medical treatment for people with diabetes, to do research related to all facets of diabetes, and to provide medical education.

Materials: Joslin Diabetes Center publishes books for people with diabetes and for professionals, videotapes, and other educational materials, as well as Joslin, a quarterly newsletter.


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